By Sushant Agarwal
Published on | May 08, 2025
World Thalassemia Day is observed annually on May 8 to raise awareness about thalassemia, a genetic blood disorder affecting millions globally.
The day highlights the importance of early diagnosis, treatment, and support for those affected by thalassemia.
World Thalassemia Day was established in 1994 by the Thalassemia International Federation (TIF) to honor George Englezos, who died from thalassemia.
Thalassemia affects people globally, particularly prevalent in the Mediterranean, Middle East, South Asia, and Southeast Asia.
Thalassemia is caused by genetic mutations affecting hemoglobin production. The two main types are alpha-thalassemia and beta-thalassemia.
Symptoms vary with severity and include fatigue, weakness, pale or yellowish skin, facial bone deformities, dark urine, and abdominal swelling.
Recent medical advancements, including gene therapy and stem cell treatments, offer hope for thalassemia patients. Awareness & support remain crucial.
The theme for World Thalassemia Day 2025 is 'Together for Thalassemia,' focusing on uniting communities and prioritizing patient-centered care.
Governments and organizations host events like blood drives, awareness campaigns & policy talks to educate and support those affected by thalassemia.
This World Thalassemia Day, let's advocate for better healthcare, genetic counseling, and support for those affected by thalassemia.